Linked Life Data

21351244

Source:http://linkedlifedata.com/resource/pubmed/id/21351244

Statements in which the resource exists as a subject.
PredicateObject
rdf:type
lifeskim:mentions
pubmed:issue
4
pubmed:dateCreated
2011-5-13
pubmed:abstractText
Genetic professionals seek to tailor their counseling to meet the background, needs, and expectations (BNE) of their clients. We present the development of a new instrument, the BNE Scale, designed to assess BNE in genetic counseling clients. The initial items for the scale were created based on a review of the literature and clinical experience. The draft scale was piloted tested with 10 subjects, using cognitive interviewing techniques. Based on those results, a revised 82-item-scale was created and posted online. It was completed by 608 adult subjects who have experience with Down syndrome, Marfan syndrome, or neurofibromatosis. Responses were analyzed in aggregate based on clinically relevant item groupings. Exploratory factor analysis was used to refine the item groupings, and these groups were evaluated for reliability and cross-correlations. As a result, 61 items across 16 subscales were retained for the final BNE Scale. Further, the subscales were segregated thematically into four groups: (1) Beliefs which includes the Consequences, Unsureness, Feelings, and Treatment subscales, (2) Social Support which includes the Spousal (or Partner) Support, Family Support, Friend Support, Healthcare Provider Support, Faith/God Support, and Support Group Interest subscales, (3) Needs which includes the Need for Information, Need for Context, and Need for Provider Input subscales, and (4) Expectations which includes the Education, Counseling, and Desired Feelings subscales. These data provide initial support for the BNE Scale as a psychometrically acceptable means to assess the clients' background, needs and expectations of genetic counseling.
pubmed:language
eng
pubmed:journal
pubmed:citationSubset
IM
pubmed:status
MEDLINE
pubmed:month
Apr
pubmed:issn
1552-4833
pubmed:author
pubmed:copyrightInfo
Copyright © 2011 Wiley-Liss, Inc.
pubmed:issnType
Electronic
pubmed:volume
155A
pubmed:owner
NLM
pubmed:authorsComplete
Y
pubmed:pagination
673-83
pubmed:meshHeading
pubmed:year
2011
pubmed:articleTitle
Development of a scale to assess the background, needs, and expectations of genetic counseling clients.
pubmed:affiliation
Penn State Institute for Diabetes and Obesity, University Park, Pennsylvania, USA. kfp1@psu.edu
pubmed:publicationType
Journal Article, Research Support, Non-U.S. Gov't