Linked Life Data

20854664

Source:http://linkedlifedata.com/resource/pubmed/id/20854664

Statements in which the resource exists as a subject.
PredicateObject
rdf:type
lifeskim:mentions
pubmed:dateCreated
2010-10-11
pubmed:abstractText
Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the condition progresses along an uncertain trajectory towards death. Much is known about the genetics and pathophysiology of these diseases, but very little has been documented about the trajectory of symptoms for children with these conditions or the associated experience of their families. A longitudinal study design will help to close this gap in knowledge.
pubmed:grant
pubmed:language
eng
pubmed:journal
pubmed:citationSubset
IM
pubmed:status
MEDLINE
pubmed:issn
1471-2431
pubmed:author
pubmed:issnType
Electronic
pubmed:volume
10
pubmed:owner
NLM
pubmed:authorsComplete
Y
pubmed:pagination
67
pubmed:meshHeading
pubmed:year
2010
pubmed:articleTitle
Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory.
pubmed:affiliation
University of British Columbia, Vancouver, BC, Canada. hsiden@cw.bc.ca
pubmed:publicationType
Journal Article, Review, Research Support, Non-U.S. Gov't