Source:http://linkedlifedata.com/resource/pubmed/id/20817884
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| Predicate | Object |
|---|---|
| rdf:type | |
| lifeskim:mentions | |
| pubmed:issue |
9
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| pubmed:dateCreated |
2010-9-6
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| pubmed:abstractText |
The Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) is a multisite collaboration to determine the prevalence of childhood-onset Duchenne/Becker muscular dystrophy and to characterize health care and health outcomes in this population. MD STARnet uses medical record abstraction to identify patients with Duchenne/Becker muscular dystrophy born January 1, 1982 or later who resided in 1 of the participating sites. Critical diagnostic elements of each abstracted record are reviewed independently by >4 clinicians and assigned to 1 of 6 case definition categories (definite, probable, possible, asymptomatic, female, not Duchenne/Becker muscular dystrophy) by consensus. As of November 2009, 815 potential cases were reviewed. Of the cases included in analysis, 674 (82%) were either ''definite'' or ''probable'' Duchenne/Becker muscular dystrophy. These data reflect a change in diagnostic testing, as case assignment based on genetic testing increased from 67% in the oldest cohort (born 1982-1987) to 94% in the cohort born 2004 to 2009.
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| pubmed:grant | |
| pubmed:language |
eng
|
| pubmed:journal | |
| pubmed:citationSubset |
IM
|
| pubmed:status |
MEDLINE
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| pubmed:month |
Sep
|
| pubmed:issn |
1708-8283
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| pubmed:author |
pubmed-author:CiafaloniEmmaE,
pubmed-author:CunniffChrisC,
pubmed-author:CwikValerieV,
pubmed-author:DruschelCharlotteC,
pubmed-author:KantamneniJiji RJR,
pubmed-author:MathewsKatherine DKD,
pubmed-author:MatthewsDennisD,
pubmed-author:MeaneyF JohnFJ,
pubmed-author:MillerLisaL,
pubmed-author:MillerTimothyT,
pubmed-author:RomittiPaul APA,
pubmed-author:SladkyJohnJ
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| pubmed:issnType |
Electronic
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| pubmed:volume |
25
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| pubmed:owner |
NLM
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| pubmed:authorsComplete |
Y
|
| pubmed:pagination |
1098-102
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| pubmed:meshHeading |
pubmed-meshheading:20817884-Adolescent,
pubmed-meshheading:20817884-Adult,
pubmed-meshheading:20817884-Child,
pubmed-meshheading:20817884-Child, Preschool,
pubmed-meshheading:20817884-Cohort Studies,
pubmed-meshheading:20817884-Cooperative Behavior,
pubmed-meshheading:20817884-Cross-Sectional Studies,
pubmed-meshheading:20817884-Diagnosis, Differential,
pubmed-meshheading:20817884-Female,
pubmed-meshheading:20817884-Genetic Predisposition to Disease,
pubmed-meshheading:20817884-Genetic Testing,
pubmed-meshheading:20817884-Humans,
pubmed-meshheading:20817884-Infant,
pubmed-meshheading:20817884-Infant, Newborn,
pubmed-meshheading:20817884-Male,
pubmed-meshheading:20817884-Muscular Dystrophy, Duchenne,
pubmed-meshheading:20817884-Population Surveillance,
pubmed-meshheading:20817884-Prevalence,
pubmed-meshheading:20817884-Retrospective Studies,
pubmed-meshheading:20817884-Young Adult
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| pubmed:year |
2010
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| pubmed:articleTitle |
Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.
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| pubmed:affiliation |
Department of Pediatrics, Roy and Lucille Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA. katherine-mathews@uiowa.edu
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| pubmed:publicationType |
Journal Article,
Research Support, U.S. Gov't, P.H.S.,
Research Support, Non-U.S. Gov't,
Multicenter Study,
Research Support, N.I.H., Extramural
|