| pubmed-article:20413285 | rdf:type | pubmed:Citation | lld:pubmed |
| pubmed-article:20413285 | lifeskim:mentions | umls-concept:C0008976 | lld:lifeskim |
| pubmed-article:20413285 | lifeskim:mentions | umls-concept:C0678236 | lld:lifeskim |
| pubmed-article:20413285 | lifeskim:mentions | umls-concept:C0034975 | lld:lifeskim |
| pubmed-article:20413285 | lifeskim:mentions | umls-concept:C1546466 | lld:lifeskim |
| pubmed-article:20413285 | pubmed:dateCreated | 2010-7-15 | lld:pubmed |
| pubmed-article:20413285 | pubmed:abstractText | Clinical trials to evaluate patients affected by rare diseases are often hampered by the difficulty of recruiting a critical sample size. Registries for rare conditions are thus extremely powerful tools for overcoming recruitment problems. Here we present and discuss the international experience with alpha1-antitrypsin deficiency achieved by the Alpha One International Registry, and national experience obtained with a large series of patients with pulmonary alveolar proteinosis. | lld:pubmed |
| pubmed-article:20413285 | pubmed:language | eng | lld:pubmed |
| pubmed-article:20413285 | pubmed:journal | http://linkedlifedata.com/r... | lld:pubmed |
| pubmed-article:20413285 | pubmed:citationSubset | IM | lld:pubmed |
| pubmed-article:20413285 | pubmed:status | MEDLINE | lld:pubmed |
| pubmed-article:20413285 | pubmed:month | Jul | lld:pubmed |
| pubmed-article:20413285 | pubmed:issn | 1532-3064 | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:ZorzettoMiche... | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:FerrarottiIla... | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:LuisettiMauri... | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:CampoIlariaI | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:ScabiniRobert... | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:MarianiFrance... | lld:pubmed |
| pubmed-article:20413285 | pubmed:author | pubmed-author:KadijaZamirZ | lld:pubmed |
| pubmed-article:20413285 | pubmed:copyrightInfo | Copyright (c) 2010 Elsevier Ltd. All rights reserved. | lld:pubmed |
| pubmed-article:20413285 | pubmed:issnType | Electronic | lld:pubmed |
| pubmed-article:20413285 | pubmed:volume | 104 Suppl 1 | lld:pubmed |
| pubmed-article:20413285 | pubmed:owner | NLM | lld:pubmed |
| pubmed-article:20413285 | pubmed:authorsComplete | Y | lld:pubmed |
| pubmed-article:20413285 | pubmed:pagination | S42-4 | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:meshHeading | pubmed-meshheading:20413285... | lld:pubmed |
| pubmed-article:20413285 | pubmed:year | 2010 | lld:pubmed |
| pubmed-article:20413285 | pubmed:articleTitle | The problems of clinical trials and registries in rare diseases. | lld:pubmed |
| pubmed-article:20413285 | pubmed:affiliation | Clinica di Malattie dell'Apparato Respiratorio, Fondazione IRCCS Policlinico San Matteo, Università di Pavia, Via Golgi 19, 27100 Pavia, Italy. m.luisetti@smatteo.pv.it | lld:pubmed |
| pubmed-article:20413285 | pubmed:publicationType | Journal Article | lld:pubmed |
