Source:http://linkedlifedata.com/resource/pubmed/id/20413285
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| Predicate | Object |
|---|---|
| rdf:type | |
| lifeskim:mentions | |
| pubmed:dateCreated |
2010-7-15
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| pubmed:abstractText |
Clinical trials to evaluate patients affected by rare diseases are often hampered by the difficulty of recruiting a critical sample size. Registries for rare conditions are thus extremely powerful tools for overcoming recruitment problems. Here we present and discuss the international experience with alpha1-antitrypsin deficiency achieved by the Alpha One International Registry, and national experience obtained with a large series of patients with pulmonary alveolar proteinosis.
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| pubmed:language |
eng
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| pubmed:journal | |
| pubmed:citationSubset |
IM
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| pubmed:status |
MEDLINE
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| pubmed:month |
Jul
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| pubmed:issn |
1532-3064
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| pubmed:author | |
| pubmed:copyrightInfo |
Copyright (c) 2010 Elsevier Ltd. All rights reserved.
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| pubmed:issnType |
Electronic
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| pubmed:volume |
104 Suppl 1
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| pubmed:owner |
NLM
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| pubmed:authorsComplete |
Y
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| pubmed:pagination |
S42-4
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| pubmed:meshHeading |
pubmed-meshheading:20413285-Clinical Trials as Topic,
pubmed-meshheading:20413285-Humans,
pubmed-meshheading:20413285-International Cooperation,
pubmed-meshheading:20413285-Patient Selection,
pubmed-meshheading:20413285-Pulmonary Alveolar Proteinosis,
pubmed-meshheading:20413285-Rare Diseases,
pubmed-meshheading:20413285-Registries,
pubmed-meshheading:20413285-alpha 1-Antitrypsin Deficiency
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| pubmed:year |
2010
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| pubmed:articleTitle |
The problems of clinical trials and registries in rare diseases.
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| pubmed:affiliation |
Clinica di Malattie dell'Apparato Respiratorio, Fondazione IRCCS Policlinico San Matteo, Università di Pavia, Via Golgi 19, 27100 Pavia, Italy. m.luisetti@smatteo.pv.it
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| pubmed:publicationType |
Journal Article
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