19671789

Source:http://linkedlifedata.com/resource/pubmed/id/19671789

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Predicate	Object
rdf:type	pubmed:Citation
lifeskim:mentions	umls-concept:C0034975, umls-concept:C0085278, umls-concept:C0231335
pubmed:issue	10
pubmed:dateCreated	2009-8-12
pubmed:abstractText	In recent years, antiphospholipid syndrome (APS) has been increasingly recognised in various paediatric autoimmune and nonautoimmune diseases, but the relatively low prevalence and heterogeneity of APS in childhood made it very difficult to study in a systematic way. The project of an international registry of paediatric patients with APS (the Ped-APS Registry) was initiated in 2004 to foster and conduct multicentre, controlled studies with large number of paediatric APS patients. The Ped-APS Registry is organised as a collaborative project of the European Forum on Antiphospholipid Antibodies and Juvenile Systemic Lupus Erythematosus Working Group of the Paediatric Rheumatology European Society. Currently, it documents a standardised clinical, laboratory and therapeutic data of 133 children with antiphospholipid antibodies (aPL)-related thrombosis from 14 countries. The priority projects for future research of the Ped-APS Registry include prospective enrollment of new patients with aPL-related thrombosis, assessment of differences between the paediatric and adult APS, evaluation of proinflammatory genotype as a risk factor for APS manifestations in childhood and evaluation of patients with isolated nonthrombotic aPL-related manifestations.
pubmed:language	eng
pubmed:journal	http://linkedlifedata.com/resource/pubmed/journal/9204265
pubmed:citationSubset	IM
pubmed:status	MEDLINE
pubmed:month	Sep
pubmed:issn	0961-2033
pubmed:author	pubmed-author:AvcinTT, pubmed-author:CimazRR, pubmed-author:Ped-APS Registry Collaborative Group, pubmed-author:RozmanBB
pubmed:issnType	Print
pubmed:volume	18
pubmed:owner	NLM
pubmed:authorsComplete	Y
pubmed:pagination	894-9
pubmed:meshHeading	pubmed-meshheading:19671789-Antiphospholipid Syndrome, pubmed-meshheading:19671789-Child, pubmed-meshheading:19671789-Humans, pubmed-meshheading:19671789-Registries, pubmed-meshheading:19671789-Thrombosis
pubmed:year	2009
pubmed:articleTitle	The Ped-APS Registry: the antiphospholipid syndrome in childhood.
pubmed:affiliation	Department of Allergology, Rheumatology and Clinical Immunology, University Children's Hospital, University Medical Center Ljubljana, Ljubljana, Slovenia. tadej.avcin@kclj.si
pubmed:publicationType	Journal Article, Research Support, Non-U.S. Gov't