rdf:type |
|
lifeskim:mentions |
|
pubmed:issue |
3
|
pubmed:dateCreated |
2008-7-29
|
pubmed:abstractText |
Persons with ALS differ from those with other terminal illnesses in that they commonly retain capacity for decision making close to death. The role patients would opt to have their families play in decision making at the end of life may therefore be unique. This study compared the preferences of patients with ALS for involving family in health care decisions at the end of life with the actual involvement reported by the family after death.
|
pubmed:grant |
|
pubmed:commentsCorrections |
|
pubmed:language |
eng
|
pubmed:journal |
|
pubmed:citationSubset |
IM
|
pubmed:status |
MEDLINE
|
pubmed:month |
Sep
|
pubmed:issn |
1478-9523
|
pubmed:author |
|
pubmed:issnType |
Electronic
|
pubmed:volume |
6
|
pubmed:owner |
NLM
|
pubmed:authorsComplete |
Y
|
pubmed:pagination |
273-80
|
pubmed:dateRevised |
2011-8-1
|
pubmed:meshHeading |
pubmed-meshheading:18662421-Advance Directives,
pubmed-meshheading:18662421-Amyotrophic Lateral Sclerosis,
pubmed-meshheading:18662421-Decision Making,
pubmed-meshheading:18662421-Family,
pubmed-meshheading:18662421-Female,
pubmed-meshheading:18662421-Hospice Care,
pubmed-meshheading:18662421-Humans,
pubmed-meshheading:18662421-Interviews as Topic,
pubmed-meshheading:18662421-Male,
pubmed-meshheading:18662421-Palliative Care,
pubmed-meshheading:18662421-Patient Participation,
pubmed-meshheading:18662421-Terminal Care
|
pubmed:year |
2008
|
pubmed:articleTitle |
Family health care decision making and self-efficacy with patients with ALS at the end of life.
|
pubmed:affiliation |
School of Nursing, Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland 21205, USA. mnolan@son.jhmi.edu
|
pubmed:publicationType |
Journal Article,
Research Support, Non-U.S. Gov't,
Research Support, N.I.H., Extramural
|