Source:http://linkedlifedata.com/resource/pubmed/id/16933256
Switch to
Predicate | Object |
---|---|
rdf:type | |
lifeskim:mentions | |
pubmed:issue |
5 Suppl
|
pubmed:dateCreated |
2006-8-31
|
pubmed:abstractText |
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.
|
pubmed:language |
eng
|
pubmed:journal | |
pubmed:citationSubset |
IM
|
pubmed:status |
MEDLINE
|
pubmed:month |
Oct
|
pubmed:issn |
1545-5009
|
pubmed:author | |
pubmed:copyrightInfo |
Copyright (c) 2006 Wiley-Liss, Inc.
|
pubmed:issnType |
Print
|
pubmed:day |
15
|
pubmed:volume |
47
|
pubmed:owner |
NLM
|
pubmed:authorsComplete |
Y
|
pubmed:pagination |
688-91
|
pubmed:dateRevised |
2009-1-12
|
pubmed:meshHeading |
pubmed-meshheading:16933256-Adolescent,
pubmed-meshheading:16933256-Child,
pubmed-meshheading:16933256-Child, Preschool,
pubmed-meshheading:16933256-Germany,
pubmed-meshheading:16933256-Humans,
pubmed-meshheading:16933256-Italy,
pubmed-meshheading:16933256-Pilot Projects,
pubmed-meshheading:16933256-Psychometrics,
pubmed-meshheading:16933256-Purpura, Thrombocytopenic, Idiopathic,
pubmed-meshheading:16933256-Quality of Life,
pubmed-meshheading:16933256-Questionnaires,
pubmed-meshheading:16933256-Reproducibility of Results,
pubmed-meshheading:16933256-Sweden
|
pubmed:year |
2006
|
pubmed:articleTitle |
Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL).
|
pubmed:affiliation |
Institute and Policlinics for Medical Psychology, University Medical Centre, Hamburg, Germany, and Department of Clinical Sciences Malmö, Research Unit for Pediatric Hematology, University Hospital Malmö, Sweden. s.mackensen@uke.uni-hamburg.de
|
pubmed:publicationType |
Journal Article,
Research Support, Non-U.S. Gov't,
Multicenter Study
|