Source:http://linkedlifedata.com/resource/pubmed/id/16448960
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Predicate | Object |
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rdf:type | |
lifeskim:mentions | |
pubmed:issue |
1
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pubmed:dateCreated |
2006-2-1
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pubmed:abstractText |
Approximately 4,500 Americans die from asthma each year. Our objective was to determine the feasibility of creating a national fatal asthma registry to better understand this problem.Methods. Using a standard questionnaire, 18 state vital statistics departments and 22 medical examiners offices were contacted in 2001 to assess availability of fatal asthma data. Funding was obtained in 2002 to implement a fatal asthma registry. During 2003, the project was put on hold due to uncertainty about the impact of the Health Insurance Portability and Accountability Act (HIPAA). The project was revived in 2004 when a standard protocol was submitted to Institutional Review Boards (IRBs) in four different states.
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pubmed:grant | |
pubmed:language |
eng
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pubmed:journal | |
pubmed:citationSubset |
IM
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pubmed:status |
MEDLINE
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pubmed:issn |
0277-0903
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pubmed:author | |
pubmed:issnType |
Print
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pubmed:volume |
43
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pubmed:owner |
NLM
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pubmed:authorsComplete |
Y
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pubmed:pagination |
19-23
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pubmed:dateRevised |
2007-12-3
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pubmed:meshHeading |
pubmed-meshheading:16448960-Asthma,
pubmed-meshheading:16448960-Confidentiality,
pubmed-meshheading:16448960-Coroners and Medical Examiners,
pubmed-meshheading:16448960-Ethics Committees, Research,
pubmed-meshheading:16448960-Feasibility Studies,
pubmed-meshheading:16448960-Health Insurance Portability and Accountability Act,
pubmed-meshheading:16448960-Humans,
pubmed-meshheading:16448960-Medical Records,
pubmed-meshheading:16448960-Questionnaires,
pubmed-meshheading:16448960-Registries,
pubmed-meshheading:16448960-Reproducibility of Results,
pubmed-meshheading:16448960-United States,
pubmed-meshheading:16448960-Vital Statistics
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pubmed:articleTitle |
Feasibility of a national fatal asthma registry: more evidence of IRB variation in evaluation of a standard protocol.
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pubmed:affiliation |
Massachusetts General Hospital, Boston, MA, USA. sclark3@partners.org
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pubmed:publicationType |
Journal Article,
Research Support, Non-U.S. Gov't,
Research Support, N.I.H., Extramural
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