Statements in which the resource exists as a subject.
PredicateObject
rdf:type
lifeskim:mentions
pubmed:issue
2
pubmed:dateCreated
2005-11-28
pubmed:abstractText
Turner syndrome (TS) is a sex chromosome condition that occurs in approximately 1/2,500 live female births. Despite the prevalence of this chromosomal condition, the challenges these women face throughout their lives are not fully understood. This qualitative research study aimed to characterize the subjective experiences of individuals with TS throughout their lifespan, to investigate their concerns and obstacles, and to offer insight into the strengths and weaknesses of health care delivery, as they perceived them. Ninety-seven girls and women with TS and 21 parents consented to participate in this interview study. Interviews were semi-structured and open-ended in design. Questions sought to elicit responses relating to existing concerns associated with their condition and positive and negative health care experiences. Participants were divided into four age categories (childhood, adolescence, adulthood, and mature adulthood) to facilitate a comparative analysis across the age spectrum. Regardless of age, infertility was the most frequently cited concern followed closely by short stature. Sexual development and function and general health were also viewed as challenges by a number of participants in each age group. Although the relative weight of these four concerns tended to shift based upon the individual's age and life experiences, all four issues remained significant throughout the lifespan. Enhanced awareness of the evolving physical and psychological challenges faced by girls and women with TS may help health care providers (HCPs) improve the quality of life for these individuals.
pubmed:grant
pubmed:commentsCorrections
http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11035816, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11035820, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11322576, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11786684, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11844747, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-11986042, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-12135826, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-12378581, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-12765856, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-12884421, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-12915081, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-1390822, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-14501599, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-14526347, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-1453288, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-15726728, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-1856645, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-2029883, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-3312258, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-3615768, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-7606849, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-8212982, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-8842858, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-8929268, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-9589645, http://linkedlifedata.com/resource/pubmed/commentcorrection/16252273-9685450
pubmed:language
eng
pubmed:journal
pubmed:citationSubset
IM
pubmed:status
MEDLINE
pubmed:month
Dec
pubmed:issn
1552-4825
pubmed:author
pubmed:copyrightInfo
Published 2005 Wiley-Liss, Inc.
pubmed:issnType
Print
pubmed:day
1
pubmed:volume
139A
pubmed:owner
NLM
pubmed:authorsComplete
Y
pubmed:pagination
57-66
pubmed:dateRevised
2011-7-28
pubmed:meshHeading
pubmed:year
2005
pubmed:articleTitle
Turner syndrome: four challenges across the lifespan.
pubmed:affiliation
National Human Genome Research Institute, NIH, Bethesda, Maryland 20892-1852, USA.
pubmed:publicationType
Journal Article, Research Support, Non-U.S. Gov't, Research Support, N.I.H., Intramural