Linked Life Data

14680009

Source:http://linkedlifedata.com/resource/pubmed/id/14680009

Statements in which the resource exists as a subject.
PredicateObject
rdf:type
lifeskim:mentions
pubmed:issue
3
pubmed:dateCreated
2003-12-17
pubmed:abstractText
Schizophrenia affects more than 1% of the world's population, causing great personal suffering and socioeconomic burden. These costs associated with schizophrenia necessitate inquiry into the causes and treatment of the illness but generate ethical challenges related to the specific nature and deficits of the illness itself. In this article, we present a systematic analysis of narrative data from 63 people living with the illness of schizophrenia collected through semistructured interviews about their attitudes, beliefs, and experiences related to psychiatric research. In the comments of these individuals, half of whom had had prior personal experience in research protocols, we identified factors influencing openness toward research involvement as well as deterrents that appear to lessen interest in participation. Clear response pattern differences emerged between those with prior research experience and those without such experience. In the discussion, we explore the key findings and outline the implications for safeguards in mental illness research.
pubmed:keyword
pubmed:language
eng
pubmed:journal
pubmed:citationSubset
E
pubmed:status
MEDLINE
pubmed:issn
1050-8422
pubmed:author
pubmed:issnType
Print
pubmed:volume
13
pubmed:owner
KIE
pubmed:authorsComplete
Y
pubmed:pagination
279-302
pubmed:dateRevised
2007-11-15
pubmed:meshHeading
pubmed:year
2003
pubmed:articleTitle
Influences upon willingness to participate in schizophrenia research: an analysis of narrative data from 63 people with schizophrenia.
pubmed:affiliation
Institute for Ethics, MSCII 6095, 1 University of New Mexico, Albuquerque, NM 87131-0001, USA. akaminisky@salud.unm.edu
pubmed:publicationType
Journal Article, Comparative Study