Source:http://linkedlifedata.com/resource/pubmed/id/12735296
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Predicate | Object |
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rdf:type | |
lifeskim:mentions | |
pubmed:issue |
4
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pubmed:dateCreated |
2003-5-7
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pubmed:abstractText |
In November 2000, the Genetic Services Committee of the National Society of Genetic Counselors (NSGC) convened a working group to draft a position paper on patenting DNA-sequences. The mandate of the group was to produce general position statements that support the perspective and needs of consumers of DNA-based genetic tests and therapies (our patients and their families) and participants in DNA-based genetic research. After review and discussion of the literature on DNA-sequence patenting issues, the working group drafted position statement points that support current United States Patent and Trademark Office (USPTO) guidelines; broad licensing of DNA-sequence patents; nonenforcement of DNA-sequence patents in noncommercial research; reasonable royalty rates; an informed consent process for research participants that discloses whether they can share in any financial rewards relating to the project; the development of guidelines for licensing of DNA-sequence patents; and the establishment of oversight organizations to monitor licensing of DNA-sequence patents. These position statements were approved by the NSGC Board of Directors in the fall of 2001.
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pubmed:keyword | |
pubmed:language |
eng
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pubmed:journal | |
pubmed:citationSubset |
E
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pubmed:status |
MEDLINE
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pubmed:month |
Aug
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pubmed:issn |
1059-7700
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pubmed:author |
pubmed-author:BraddockBonnie RBR,
pubmed-author:BrandaKelly JKJ,
pubmed-author:EanetKarenK,
pubmed-author:GoldbergSimonS,
pubmed-author:KiefferStephanie ASA,
pubmed-author:McIntoshNathalieN,
pubmed-author:National Society of Genetic Counselors DNA Sequence Patenting Position...,
pubmed-author:PrimianoLisaL,
pubmed-author:QuerciaNadaN,
pubmed-author:TaylorKelly AKA,
pubmed-author:TsipisJudithJ,
pubmed-author:YasharBeverly MBM,
pubmed-author:YesleyAnneA
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pubmed:issnType |
Print
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pubmed:volume |
11
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pubmed:owner |
KIE
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pubmed:authorsComplete |
Y
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pubmed:pagination |
241-3
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pubmed:dateRevised |
2009-11-19
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pubmed:meshHeading |
pubmed-meshheading:12735296-Base Sequence,
pubmed-meshheading:12735296-Genetic Counseling,
pubmed-meshheading:12735296-Genetic Research,
pubmed-meshheading:12735296-Genetic Services,
pubmed-meshheading:12735296-Genetic Testing,
pubmed-meshheading:12735296-Humans,
pubmed-meshheading:12735296-Informed Consent,
pubmed-meshheading:12735296-Licensure,
pubmed-meshheading:12735296-Organizational Policy,
pubmed-meshheading:12735296-Patents as Topic,
pubmed-meshheading:12735296-Research Subjects,
pubmed-meshheading:12735296-Societies
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pubmed:year |
2002
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pubmed:articleTitle |
DNA-sequence patenting: National Society of Genetic Counselors (NSGC) position paper.
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pubmed:affiliation |
Brandeis University, Genetic Counseling Program, MS008, 415 South Street, Waltham, Massachusetts 02454, USA. mcintosh@brandeis.edu
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pubmed:publicationType |
Journal Article
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