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rdf:type |
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lifeskim:mentions |
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pubmed:issue |
12
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pubmed:dateCreated |
2001-2-5
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pubmed:abstractText |
The under-representation of racial/ethnic minorities among medical research participants has recently resulted in mandates for their inclusion by the National Institutes of Health (NIH). Therefore, there is a need to determine how history, attitudes, cultural beliefs, social issues, and investigator behavior affect minority enrollment in medical research studies. From January 1998 to March 1999, 179 African-American and white residents of the Detroit Primary Metropolitan Statistical Area (PMSA) participated in a mail and telephone survey designed to examine impediments to African-American participation in medical research studies. Chi-square tests were performed to assess differences between the study groups using the Survey Data Analysis Program (SUDAAN). Eighty-one percent of African Americans and 28% of whites had knowledge of the Tuskegee Study (p = <0.001). Knowledge of the Tuskegee Study resulted in less trust of researchers for 51% of African-Americans and 17% of whites (p = 0.02). Forty-six percent of African-Americans and 34% of whites indicated that their knowledge of the study would affect future research participation decisions (p = 0.25). Of these, 49% of African-Americans and 17% of whites would not be willing to participate in future medical research studies (p = 0.05). This study confirms the need for medical researchers to confront the issue of the Tuskegee Study and its continuing impact on African-Americans' trust of medical research studies.
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pubmed:grant |
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pubmed:commentsCorrections |
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-11656870,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-13177830,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-13177831,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-1428846,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-1428847,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-1428848,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-1734108,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-2014877,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-3309660,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-3812521,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-8123285,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-8189450,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-8545224,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-8874686,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-8973222,
http://linkedlifedata.com/resource/pubmed/commentcorrection/11202759-9395587
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pubmed:keyword |
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pubmed:language |
eng
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pubmed:journal |
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pubmed:citationSubset |
E
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pubmed:status |
MEDLINE
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pubmed:month |
Dec
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pubmed:issn |
0027-9684
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pubmed:author |
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pubmed:issnType |
Print
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pubmed:volume |
92
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pubmed:owner |
NLM
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pubmed:authorsComplete |
Y
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pubmed:pagination |
563-72
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pubmed:dateRevised |
2009-11-18
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pubmed:meshHeading |
pubmed-meshheading:11202759-Adolescent,
pubmed-meshheading:11202759-Adult,
pubmed-meshheading:11202759-African Americans,
pubmed-meshheading:11202759-Attitude to Health,
pubmed-meshheading:11202759-Clinical Trials as Topic,
pubmed-meshheading:11202759-Cultural Characteristics,
pubmed-meshheading:11202759-Ethics, Medical,
pubmed-meshheading:11202759-European Continental Ancestry Group,
pubmed-meshheading:11202759-Female,
pubmed-meshheading:11202759-Focus Groups,
pubmed-meshheading:11202759-Humans,
pubmed-meshheading:11202759-Informed Consent,
pubmed-meshheading:11202759-Male,
pubmed-meshheading:11202759-Michigan,
pubmed-meshheading:11202759-Middle Aged,
pubmed-meshheading:11202759-Physician-Patient Relations,
pubmed-meshheading:11202759-Questionnaires,
pubmed-meshheading:11202759-Research,
pubmed-meshheading:11202759-Retrospective Studies
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pubmed:year |
2000
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pubmed:articleTitle |
Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies.
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pubmed:affiliation |
Department of Epidemiology, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USA.
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pubmed:publicationType |
Journal Article,
Comparative Study,
Research Support, U.S. Gov't, P.H.S.
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