As medical technology has improved, there has been a marked increase in the numbers of children with life-limiting conditions being managed in the community. Few studies have evaluated the life worlds of the parents of these children. However, there have been studies that have reported feelings of isolation and depression among mothers. This article reports a study that highlights the mental health implications of the lived experience of parenting a child with a life-limiting condition.
Department of Behavioural Sciences, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, United Kingdom. a.m.rodriguez@hud.ac.uk