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pubmed-article:20951236pubmed:abstractTextWith increasing knowledge of the molecular pathways contributing to the progression of neurofibromatosis type 1 (NF1)-related plexiform neurofibroma (PN), the number of clinical trials for PNs has increased. However, little is known about the experiences of families with children with NF1 participating in clinical trials.lld:pubmed
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pubmed-article:20951236pubmed:articleTitleExperiences of families with a child, adolescent, or young adult with neurofibromatosis type 1 and plexiform neurofibroma evaluated for clinical trials participation at the National Cancer Institute.lld:pubmed
pubmed-article:20951236pubmed:affiliationPediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA. martins@mail.nih.govlld:pubmed
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