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pubmed-article:18949673pubmed:abstractTextWith the increasing number of long-term survivors among patients diagnosed with cancer during childhood, questions concerning late effects have become a major research topic. To ascertain late effects, it is necessary to contact former patients. An essential requirement for such studies is a long-term surveillance (LTS) of former childhood cancer patients in their adolescence and their adulthood. The paper describes the role of the German Childhood Cancer Registry (GCCR) in LTS. A cohort of long-term survivors has been built up over the years. The characteristics of this LTS cohort and strategies for further improvement of LTS will be presented.lld:pubmed
pubmed-article:18949673pubmed:languageenglld:pubmed
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pubmed-article:18949673pubmed:articleTitleThe cohort of long-term survivors at the German childhood cancer registry.lld:pubmed
pubmed-article:18949673pubmed:affiliationGerman Childhood Cancer Registry (GCCR) at the Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University of Mainz, Germany. debling@imbei.uni-mainz.delld:pubmed
pubmed-article:18949673pubmed:publicationTypeJournal Articlelld:pubmed
pubmed-article:18949673pubmed:publicationTypeResearch Support, Non-U.S. Gov'tlld:pubmed